{"id":472,"date":"2026-03-02T10:55:45","date_gmt":"2026-03-02T10:55:45","guid":{"rendered":"https:\/\/efanet.org\/annual-report\/?page_id=472"},"modified":"2026-03-06T13:00:48","modified_gmt":"2026-03-06T13:00:48","slug":"efa-care-projects","status":"publish","type":"page","link":"https:\/\/efanet.org\/annual-report\/2023\/care\/efa-care-projects\/","title":{"rendered":"EFA Care Projects"},"content":{"rendered":"\n

In 2023, EFA\u2019s care projects were rolled out as community projects<\/strong>, collaborative endeavours within our community. These initiatives involved ongoing engagement and active participation from members of the EFA community, organisedby disease area.<\/p>\n\n\n\n

Atopic Eczema Consensus Europe: communicating the burden of Atopic Eczema<\/h2>\n\n\n\n

In 2023, EFA worked on the dissemination of the 2022 Atopic Eczema Consensus Report<\/strong><\/a>, focused on the burden carried by patients. We translated the report into 10 EFA languages to enable the message spread at national level by EFA members\u2019 community<\/strong>. As the report contains a series of key policy recommendations to the national healthcare systems, <\/strong>we also developed a published a \u201cCall to action on the burden of atopic eczema\u201d<\/a>, and we started the translations into 10 languages.<\/p>\n\n\n\n

To maximise the impact of EFA\u2019s consensus project and promote the recommendations to achieve changes in national healthcare systems, EFA coupled the report with a European Atopic Eczema Toolkit addressed to the national level, <\/strong>that will also be translated in at least 10 EFA languages in 2024.<\/p>\n\n\n\n

At the end of 2023, EFA was awarded with an additional unrestricted grant, to enable further national action within the EFA Members\u2019 community.<\/strong> The funds will help catalysing the recommendations as they will allow EFA to provide members with specific grants for national atopic eczema advocacy making use of the European consensus materials (report, call to action and advocacy toolkit).<\/p>\n\n\n

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The 2022 European Consensus Report on the Burden of Atopic Eczema was translated into Bulgarian, Danish, Dutch, French, German, English, Portuguese, Slovenian, Spanish, Serbian and Turkish.<\/em><\/p>\n\n\n

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From left to right, EFA Junior Communications Officer Polina Peredera and EFA Director Susanna Palkonen at the EFA booth during the EADV Congress 2023.<\/em><\/p>\n\n\n\n

In October 2023, a delegation of two EFA representatives attended the European Academy of Dermatology and Venereology (EADV) Congress in Berlin<\/strong>. EFA held a booth in the Patient Organisation Area, where we presented the report to visiting patients\u2019 representatives and healthcare professionals. We presented our #AtopicalLives multimedia exhibition<\/a><\/strong>, bringing to the centre the challenges<\/strong> of adult and child patients living with the burden of atopic eczema to the scientific congress. For more information about our collaboration with EADV, please visit the partnerships section.<\/p>\n\n\n\n

During EADV, we launched a social media campaign with nine posts on X<\/a>, which gathered +2,500 organic views and +1,700 impressions, and one on LinkedIn<\/a>, which generated +600 organic impressions and +140 link clicks. As part of that action, we launched a video playlist with EFA recommendations on how to improve the diagnosis and care for patients living with atopic eczema. The seven videos, \u2018The Burden of Atopic Eczema \u2013 A message to European policymakers\u2019<\/a>, feature several members of the EFA\u2019s European Consensus Committee, and collected +400 organic views.<\/p>\n\n\n

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EFA presented the European Consensus Report 2022 on the burden of atopic eczema to the physical and online exhibition of EADV 2023.<\/em><\/p>\n\n\n\n

GUIDE Asthma<\/h2>\n\n\n\n

GUIDE Asthma is a project lying at the heart of EFA\u2019s mission to improve access to timely, accessible, and patient-centred care for allergy, asthma, and COPD patients in Europe<\/strong>.<\/p>\n\n\n\n

In 2023, EFA published AboutAsthma.org<\/a>, an educational source<\/strong> that provides science-based information and tips to patients and carers around five areas<\/strong>: asthma symptoms, attacks, care, life with asthma, and help. The content has been developed in close collaboration with healthcare professionals and members of the EFA Allergy and Asthma Working, and it is based on the 2022 Global Initiative for Asthma (GINA) Strategy Report.<\/p>\n\n\n\n

Through this project, for the first time, the very latest knowledge arising from international guidelines is accessible widely to European and global asthma patients and carers<\/strong>.<\/p>\n\n\n\n

The website puts asthma science and patients\u2019 experience at the centre<\/strong> of its content. It is also open for scientific input and patient feedback about asthma, through a contact form<\/a>. The website is available in English and will be translated into more languages in 2024. It received 1,100 website views around the time of the launch.<\/p>\n\n\n\n

The website AboutAsthma.org<\/a> was launched through a mailing sent on World Lung Day to +1,400 recipients with an average opening rate of 30%. We also promoted the new website through a social campaign around the #AboutAsthma hashtag which was mentioned +20 times on EFA Social Media channels, gathering +210,000 organic views.<\/p>\n\n\n\n

Importantly, we presented the AboutAsthma.org<\/a> website through a specific live webinar \u2018Sharing is Caring: Exchanging Knowledge on Asthma Care<\/a>‘, on the 25th<\/sup> of September 2023, World Lung Day. The webinar, organized in collaboration with the Global Allergy and Airways Patients Platform (GAAPP), welcomed +100 attendees from more than 20 different countries around the world to build on the need for better access on educational information about asthma with expert speakers and patients from Ukraine, Nigeria, and Bulgaria.  <\/p>\n\n\n\n

\u201cMany patient organisations in Europe report that people do not have access to online educational resources to support them on their condition. AboutAsthma.org<\/a> seeks to provide asthma patients and carers access with a source of reliable, patient-centred, and comprehensive information around asthma.\u201d<\/p>\n\n\n\n

EFA President, Marcia Podest\u00e0 on the launch of the website.<\/p>\n\n\n\n

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Thank you!<\/h3>\n\n\n\n

EFA warmly thanks:<\/p>\n\n\n\n