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<\/figure>\n<\/div>\n\n\nInitiated by EFA Patients in 2019 and kicked off in 2020, 2021 saw the evolution of the ELHG to become a platform for the seven European level patient groups, the European Respiratory Society and the European Lung Foundation to gather, strategize and learn from each other, as well as develop joint advocacy to drive policy change for lung health.<\/p>\n\n\n\n
BREATHE Vision for 2030, a roadmap for lung health<\/h3>\n\n\n\n
In January 2021, we launched the BREATHE Vision for 2030, a document that outlines the changes that lung patients want to see in their lives over the next decade. It covers the areas of Awareness, Prevention, Access, Research, and the Impact of COVID-19, all while working towards a European Health Union.<\/p>\n\n\n\n
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<\/figure>\n<\/div>\n<\/div>\n\n\n\n[Launch of BREATHE Vision for 2030. Tamsin Rose, moderator; MEP Istv\u00e1n Ujhelyi (S&D, Hungary); MEP \u017deljana Zovko (EPP, Croatia)]<\/em><\/p>\n\n\n\n Its launch was warmly welcomed by Members of the European Parliament (MEPs) Istv\u00e1n Ujhelyi (S&D\/Hungary), \u017deljana Zovko (EPP\/Croatia) and Sean Kelly (EPP\/Ireland). The BREATHE Vision for 2030 was institutionalised by keynote speakers from the European Commission Directorate General for Health and Food Safety (DG SANTE), Deputy Director of DG SANTE, Mr Pierre Delsaux, and the Coordinator of the WHO European Office for Noncommunicable Diseases, Jill Farrington.<\/p>\n\n\n\n To build on the BREATHE Vision, the ELHG held a follow-up in-depth meeting with Deputy Director General, Mr Pierre Delsaux, on how to address lung health (all chronic, rare and infectious respiratory diseases), in the current EU4Health Programme 2021-2027. After the meeting, DG SANTE nominated a Principal Adviser for non-communicable diseases.<\/p>\n\n\n\n The group also met with the DG SANTE Coordinator of the Steering Group on Health Promotion, Disease Prevention and Management of Non-Communicable Diseases and specialists from the Joint Research Center. They discussed how to identify and present the best practices (population interventions) on lung health prevention and care, that could lead to EU-funded or supported programmes to address respiratory disease.<\/p>\n\n\n\n Throughout the year, the ELHG deepened our advocacy calls during several official legislative review procedures launched by the European Commission. The ELHG agreed on a two-year advocacy plan which detailed its opportunities and deliverables. As a result, the nine organisations together presented priorities that the European Union should act upon in the areas of:<\/p>\n\n\n\n In February 2022, the ELHG group launched in the framework of the European Parliament MEP Lung Health Group a Policy Brief on the upcoming European Commission Proposal for a Regulation on the European Health Data Space (EHDS). The event was hosted by Portuguese socialists Members of the European Parliament (MEPs) Sara Cerdas and Manuel Pizarro with over 500 participants registered.<\/p>\n\n\n\n These achievements would not have been possible without the insights, vision and dedication of the eight European organisations that have participated in the discussions and drafting of this paper, on a voluntary basis.<\/p>\n\n\n\n 2021 brought the consolidation year for the European Lung Health Group (ELHG), a collective initiative driven by European level patient groups and respiratory societies collaborating for better respiratory healthcare and respiratory protection of our lungs. Initiated by EFA Patients in 2019 and kicked off in 2020, 2021 saw the evolution of the ELHG to become […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":644,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"page_2021.php","meta":{"_acf_changed":false,"inline_featured_image":false,"advgb_blocks_editor_width":"","advgb_blocks_columns_visual_guide":"","footnotes":""},"class_list":["post-650","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nThe lung health voice on EU digital health and medicines<\/h3>\n\n\n\n
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