EFA Meet and Greet the EU training: Patient Involvement in EU Funded Research Projects

 

 

Meet and Greet the EU Training: Patient Involvement in EU Funded Research Projects

14 December 13:00-17:00 CEST (Brussels)

Online

EFA’s Meet & Greet the EU Training is the second part of a 2-part series for EFA’s capacity building project for 2021. This session is complementary to the previous Meet & Greet with the European Medicines Agency in which EFA Members learned about the regulatory processes governing medicines development and practical guidance for involvement. This session will provide EFA members with the necessary skills to participate in research projects funded by the European Union, helping to advance the field of medicine or prevention efforts related to their disease areas.

Objective: INFORM – provide meaningful input to foster skills and competencies for EFA Members and other expert respiratory disease patients interested in participating in EU funded research projects. 

Target Audience: Staff, volunteers, and members of the Board of EFA member organisations. Also open to unaffiliated patients provided they belong to patient groups active in the field of allergy and/or respiratory disease.

 

 

Time  Topic Objectives Speakers 
13h00-13h15 

Welcome  

Welcome and tour de table 

Technical guidance 

Objectives of the meeting 

 

Welcome participants to the meeting and give a brief overview of the purpose and content of the training 

Introduce EU funded research 

Valeria Ramiconi, Programme Manager, EFA 
13h15-14h15 

Patient Involvement in research 

What is patient involvement and what forms does it take in research? 

Why is patient involvement important? 

Becoming a patient expert with EUPATI 

 

Q&A  

Overview of benefits of research involvement 

Inform patients of progression of PE and what to expect or propose when participating 

Empower patients to recognise and/or facilitate meaningful PE experiences in research consortia 

Introduce the idea of becoming a patient expert with EUPATI 

TBC 

 

14h15-15h15 

Sharing Best Practices 

Experiences from members and partners in research projects 

 

(15 min each with 15 min Q&A) 

- 3TR 

-myAirCoach 

-UBIOPRED 

 

Contextualise the information with a real-world example 

Demonstrate the feasibility of involvement in different roles 

Showcase the importance and the impact of patient involvement in advisory role in a research project 

TBC 

 

15h15-15h30 Comfort Break   
15h30-16h45 

How to get involved 

Introduction to EU funding taxonomy  

Getting noticed by funders and project partners 

 

Q&A 

Inform patients on the logistics of getting involved: building a strategy for future engagement 

Introduce patients to resources available to them 

 

TBC 

 

16h45-17h00 Wrap up and move forward as an EFA community 

Give participants a succinct overview of what they learned 

Inspire them to build a strategy for engagement and colla 

Valeria Ramiconi, Programme Manager, EFA 

 

When
14th December, 2021 1:00 PM through  5:00 PM
Location
Virtual event on Zoom
Brussels,
Belgium
Contact
Phone: +3222272712

Dear Visitor,

for regularly updated information on Covid-19 for allergy and respiratory patients, please consult our Covid-19 resource and information hub.
Stay safe!
The EFA Team