The EU at a policy crossroads: What role for allergy, asthma and COPD patients?
Dates: Wednesday 10 and 17 February 2021
Context: The EFA Meet & Greet EU training is part of the EFA capacity building programme of 2020
Objective: The objective of the training is to increase understanding among EFA patient networks about the policies and opportunities. The topics have been selected to reflect EFA disease areas.
Target audience: Staff, volunteers and members of the Board of EFA members. Open also to non-EFA members determined on case-by-case basis.
The EU at a policy crossroads: What role for allergy, asthma and COPD patients?
Dates: Wednesday 10 and 17 February 2021
Context: The EFA Meet & Greet EU training is part of the EFA capacity building programme of 2020
Objective: The objective of the training is to increase understanding among EFA patient networks about the policies and opportunities. The topics have been selected to reflect EFA disease areas.
Target audience: Staff, volunteers and members of the Board of EFA members. Open also to non-EFA members determined on case-by-case basis.
Day 1
EU policy framework overview: Opportunities for EFA patient advocates
The 1st day focuses on the current policy context. Session 1 presents the trends driving the EU health policy today. Session 2 goes into detail on specific policies to be discussed in 2021 and that are relevant to the work of EFA members.
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Welcome
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10.00-10.15
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Welcome and tour de table
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Moderated by Isabel Proaño
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Introduction
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10.15-10.25
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Introduction to the EU institutions and legislative process
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Moderated by Panagiotis Chaslaridis
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Session 1
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10.25-11.00
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Decoding EU health policy trends – Opportunities for patient advocates
- EU4Health budget 2021-2027: a promise for better health in Europe
- COVID-19 health crisis: Lessons learnt and impact on EFA patients
- European Health Union: Towards a stronger EU mandate on health
Discussion
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Moderated by Panagiotis Chaslaridis
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11.00-11.10
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Coffee break
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Session 2
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11.10-12.35
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Policies in the spotlight in 2021
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Moderated by Isabel Proaño
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- Balancing health and environment - The case of the F-gases regulation affecting asthma and COPD
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Jane Scullion, Consultant Respiratory Nurse, NHS (University Hospitals of Leicester)
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- Towards stricter air pollution levels outdoors, building the case indoors
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Sophie Perroud – Policy Coordinator (Health & Environment Alliance - HEAL)
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- Indoor Air Quality: Building the case for healthy indoor environments
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Anita Derjanecz – Managing Director (Federation of European Heating, Ventilation and Air-conditioning Associations – REHVA)
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- Enabling better food information under the Farm-to-Fork strategy, impacting people with food allergy
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Marjan van Ravenhorst - Director & consultant (Allergenen Consultancy)
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Wrap up
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12.35-12.50
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Participants will vote on the policy to build a strategy for the next session
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Moderated by Isabel Proaño |
| 12.50-13.00 |
Preview of Day 2: preparing for the advocacy workshop |
External consultant/ Trainer |
Day 2
Advocacy workshop: Effective interaction with policymakers
The 2nd day is organised as an advocacy workshop for change through policy and legislation, with the help of an external consultant/trainer. The goal of Session 1 is to provide the basis of strategic planning to roll out tailored, disease-specific advocacy at national and EU level. Session 2 looks into the ‘micro-environment’ of a meeting with a policymaker, with the objective of learning best practices for an effective and meaningful advocacy meeting. Finally, session 3 uses the Breathe Vision for 2030 as a case-study on how to connect European and national advocacy.
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Welcome
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10.00-10.10
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Welcome and introduction to the purpose of the workshop
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EFA staff
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Session 1
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10.10-10.45
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Strategising disease-specific advocacy
- Defining your advocacy priority
- What is needed to be ready to go, and to grow attention
- Strategies: data, testimonials, campaigning and network
Disease-specific advocacy and the role of healthcare professionals
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External consultant/Trainer (tbc)
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Session 2
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10.45-11.45
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Informing policymakers, with the example of the policy chosen at the end of the first day
- Who to address? Choosing the right interlocutor
- Channels of engagement: How and when to approach a Member of the (European) Parliament
- Preparing your meeting: policy context, background research and tailored argumentation
- Ensuring continued dialogue
Participants’ engagement with policymakers – Sharing experiences and best practices
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External consultant/Trainer (tbc)
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11.45-12.00
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Coffee break
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Session 3
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12.00-12.45
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Using the Breathe Vision for 2030 at national level
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External consultant/Trainer (tbc)
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Wrap up
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12.45-13.00
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With EFA Staff
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