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Events

It is a pleasure to invite you to the 2024 EFA Annual General Meeting (AGM) and Community Meeting to take place on 8-9 April 2024 in Stockholm, Sweden

This year we are glad to collaborate with our Swedish Member organisations, Swedish Asthma and Allergy Association and Swedish Heart and Lung Association. The Programme is developed in close collaboration with Community Meeting Committee and will be shared with you soon. AGM business session will be available in a hybrid format for those who cannot attend in person.

IMPORTANT: Registrations for in person participants are open until 11 March 2024 18:00 CET and for online participants until 5 April 2024 23:59 CET. 

 

In the EU, 1 in 8 deaths are caused by lung diseases, and numbers are rising. The COVID-19 pandemic has pushed the EU and Member States towards more coordinated action on health, primarily focused on crisis prevention and preparedness, while the EU’s ambition of a European Health Union has brought to the forefront the many EU instruments to protect public health and advance health outcomes. 

The MEP Lung Health Group will host the presentation of the new publication, “#KeepBreathing: A vision for EU action on lung health 2024-2029”. Panellists and participants will discuss avenues for a sustained, focused and achievable EU action to improve lung health and respiratory disease care in Europe. Download the agenda here. 

Meet our speakers: 

Eva Polverino, Director of Scientific Relations with the EU European Respiratory Society (ERS)

Marcia Podestà, President European Federation of Allergy and Airways Diseases Patients’ Associations (EFA)

MEP Tomislav Sokol (Croatia/EPP) - Co-Chair of MEP Lung Health Group, (Croatia, EPP)

MEP Radka Maxová (Czechia/S&D)

MEP Stelios Kympouropoulos (Greece/EPP)

Online | 21 February 2024 | Register here

 

The management of asthma requires understanding the underlying conditions, knowledge about specific triggers, recognition of symptoms/signs and a tailored treatment. Asthma control remains relatively poor in Europe and across the world, and patients do not always have access to sufficiently accurate educational resources to help managing the disease.

This webinar is the occasion to discuss the importance of asthma health literacy and of having access to scientifically validated information designed and written for asthma patients and families.

EFA, in collaboration with GAAPP, the Global Allergy and Airways Patients Platform, and the whole European asthma patient community, launched an initiative aimed at creating a patients’ hub where asthma patients and their families can access trustful information developed with and for the patients, to better understand and improve the daily management of the disease, hence their quality of life.

AboutAsthma.org contains information to increase the knowledge of the disease, therefore empowering asthma patients and their families, towards enabling taking an active role in the management of asthma. Increasing knowledge also helps improving communication between doctors and patients, as well as avoiding misconception and mistrust.

SHARING IS CARING: EXCHANGING KNOWLEDGE ON ASTHMA CARE

Live webinar on 26th October 2023 1:00 pm – 2:00 pm CEST

Registration page

 

EFA and SynAir-G are excited to invite you to the first hybrid workshop of SynAir-G Series: Improving indoor air quality for healthier children!

The series aim to introduce and discuss the latest achievements of the SynAir-G project and shed light on the importance of indoor air quality in schools, its impact on children wellbeing, and possible applications in Research and Development with the ultimate objective to raise awareness on the importance of improving the quality of indoor air and ensure safer environment for children.

In the first episode “Indoor air quality in schools: impact on children wellbeing and the role of research”, we will focus on the current status of indoor air quality in schools across Europe and explore challenges and needs at local level.  

The main discussion will revolve around the  impact of indoor air pollution on children health and learning, especially when detected in schools. The episode will round off with a stimulating discussion on how to innovate devices and services in the school sector through participatory approaches.  

The event will gather prominent speakers and experts in the field including representatives from researchers, healthcare professionals, patients and local authorities that will share their experience, knowledge and perspectives.  

Interested in participating? Join in person or online:

WHEN: 9 October 2023, 10:00 -12:00 CEST  

WHERE: In person & Online

  • In person:  

Faculty of Medicines of the University of Montpellier-Nimes, Salle Excellence des practiques (5th floor) 

641 avenue du Doyen Gaston Giraud 

34 090 Montpellier

  • Online: Zoom 

How to attend:

Limited numbers of spots available to attend in person. 

 

It is a pleasure to invite you to the 2023 EFA Annual General Meeting (AGM) and Community Members’ Meeting to take place from 27-28 April in Ghent, Belgium

This year we are glad to collaborate with Erika Colen and Karen Vande Casteele from our Belgian member organisation, Asthma-en Allergiekoeppel vzw

Programme development is ongoing working closely with the new Members’ Meeting Committee dedicated for this meeting. For the moment we can share with you that we anticipate a 1.5-day programme, with a full day of activities on the 27th. Moreover, the AGM business session will be available in a hybrid format for those who cannot or do not wish to travel.

 

EFA, supported by the European Lung Foundation ELF conducted a survey among EFA membership and the wider asthma patient association community to identify information on the asthma patient education materials available across Europe and wider. During the workshop we will discuss the results, best practices, and reflect on what is available for patients, identify the gaps in the current education material available to asthma patients and provide Patient Organisations useful data to entail discussions with national scientific societies to advocate for the implementation of the existing guidelines and for the improvement of asthma patients educational resources, to ensure that patients are better supported and empowered across their care.

Discover the workshop programme and register here

 

This training aims to increase EFA Members’ knowledge and skills to advocate for change at EU and national level, as well as to expand EFA Members’ understanding of EU and national level advocacy fields, and get familiar with ways to deliver an optimal advocacy campaign.

In order to accommodate everyone’s availability, avoid any overlap with your everyday job, and ensure high participation from you and your colleagues, the training will be taking place after working hours, on Thursday, 24th November 2022 from 17:30 to 20:30 CET, in an online format.

We look forward to seeing you in our online advocacy training! 

Discover the Training Agenda here

Register Now

 

The Meet & Greet the EU series is part of EFA’s 2022 Capacity Building Programme. Following our 2021 Meet & Greet with the EMA on patients’ engagement, this session aims to further develop Member knowledge of the form and function of the European Medicines Agency (EMA), the new EU regulation expanding its mandate, and the entry into force of the Clinical Trials Regulation and what it all means for patients living with respiratory and allergic diseases.

Discover the agenda and Register Now

 

EFA is pleased to invite you to the upcoming event of the European Parliament Interest Group on Allergy & Asthma, For an EU NCD Initiative that prevents and cares - Connecting the dots for better allergy and asthma health in Europe’, taking place on Thursday 29 September from 14.00 - 15.30 in person at the European Parliament, online participation is also welcome for this event. 

The event will revolve around the recently launched Healthier Together-EU NCD Initiative and its prospects for addressing allergy and asthma, two of the most common chronic non-communicable diseases in Europe. Beyond demonstrating the heavy and diverse health burden of the diseases, especially among children and the youth, the discussions will also aim to present policy proposals for better prevention and care.

Discover the preliminary agenda here.

The event will be hybrid format, held both in the European Parliament and online.

Please note the timing of the event has been changed from 15:00-16:30 to 14:00-15:30

Register now

 

EFA and the European Allergy and Asthma Youth Parliament is excited to invite young patients to take part in the Young Leadership Training. This capacity building event will take place 29-30th September 2022 in Brussels, Belgium. During these two days, participants will take part in workshops and tours to see up close how the EU operates. They will also skills and understanding in how as young patient advocates, they can have a voice in decision-making to improve the Quality of Life for young allergy and asthma patients across Europe.

  • Discover the Preliminary Programme here
  • Discover some Practical Information about Brussels. Please note that we will keep updating this document with more information, stay tuned!

Register your interest now.