The management of asthma requires understanding the underlying conditions, knowledge about specific triggers, recognition of symptoms/signs and a tailored treatment. Asthma control remains relatively poor in Europe and across the world, and patients do not always have access to sufficiently accurate educational resources to help managing the disease.

This webinar is the occasion to discuss the importance of asthma health literacy and of having access to scientifically validated information designed and written for asthma patients and families.

EFA, in collaboration with GAAPP, the Global Allergy and Airways Patients Platform, and the whole European asthma patient community, launched an initiative aimed at creating a patients’ hub where asthma patients and their families can access trustful information developed with and for the patients, to better understand and improve the daily management of the disease, hence their quality of life.

AboutAsthma.org contains information to increase the knowledge of the disease, therefore empowering asthma patients and their families, towards enabling taking an active role in the management of asthma. Increasing knowledge also helps improving communication between doctors and patients, as well as avoiding misconception and mistrust.

SHARING IS CARING: EXCHANGING KNOWLEDGE ON ASTHMA CARE

Live webinar on 26^th October 2023 1:00 pm – 2:00 pm CET

Registration page

EFA and SynAir-G are excited to invite you to the first hybrid workshop of SynAir-G Series: Improving indoor air quality for healthier children!

The series aim to introduce and discuss the latest achievements of the SynAir-G project and shed light on the importance of indoor air quality in schools, its impact on children wellbeing, and possible applications in Research and Development with the ultimate objective to raise awareness on the importance of improving the quality of indoor air and ensure safer environment for children.

In the first episode “Indoor air quality in schools: impact on children wellbeing and the role of research”, we will focus on the current status of indoor air quality in schools across Europe and explore challenges and needs at local level.  

The main discussion will revolve around the  impact of indoor air pollution on children health and learning, especially when detected in schools. The episode will round off with a stimulating discussion on how to innovate devices and services in the school sector through participatory approaches.  

The event will gather prominent speakers and experts in the field including representatives from researchers, healthcare professionals, patients and local authorities that will share their experience, knowledge and perspectives.  

Interested in participating? Join in person or online:

WHEN: 9 October 2023, 10:00 -12:00 CEST  

WHERE: In person & Online

• In person:  

Faculty of Medicines of the University of Montpellier-Nimes, Salle Excellence des practiques (5th floor) 

641 avenue du Doyen Gaston Giraud 

34 090 Montpellier

• Online: Zoom 

How to attend:

• Register HERE 

• Download the agenda HERE   

Limited numbers of spots available to attend in person. 

This hybrid event, co-hosted by MEP Sirpa Pietikäinen (EPP, Finland), MEP Juozas Olekas (S&D, Lithuania), will serve to present the technological advances around bioaerosols and to lay the foundations for an EU One Health-in-all-policies, with a discussion on how to translate high-level scientific results into benefits for health and society. A joint statement has been developed by scientific research and patients’ organisations laying out a set of recommendations for the European Union.

Join the roundtable discussion on 4 July 2023:14:00 - 16:00 CEST.

This event will take place European Parliament Brussels, Altiero Spinelli, Room 3H1. 

• Register here
• Discover the event agenda

It is a pleasure to invite you to the 2023 EFA Annual General Meeting (AGM) and Community Members’ Meeting to take place from 27-28 April in Ghent, Belgium. 

This year we are glad to collaborate with Erika Colen and Karen Vande Casteele from our Belgian member organisation, Asthma-en Allergiekoeppel vzw. 

Programme development is ongoing working closely with the new Members’ Meeting Committee dedicated for this meeting. For the moment we can share with you that we anticipate a 1.5-day programme, with a full day of activities on the 27th. Moreover, the AGM business session will be available in a hybrid format for those who cannot or do not wish to travel.

• Discover about Ghent and other practical information here .
• Discover the meeting programme here.
• Register here

EFA, supported by the European Lung Foundation ELF conducted a survey among EFA membership and the wider asthma patient association community to identify information on the asthma patient education materials available across Europe and wider. During the workshop we will discuss the results, best practices, and reflect on what is available for patients, identify the gaps in the current education material available to asthma patients and provide Patient Organisations useful data to entail discussions with national scientific societies to advocate for the implementation of the existing guidelines and for the improvement of asthma patients educational resources, to ensure that patients are better supported and empowered across their care.

Discover the workshop programme and register here. 

This training aims to increase EFA Members’ knowledge and skills to advocate for change at EU and national level, as well as to expand EFA Members’ understanding of EU and national level advocacy fields, and get familiar with ways to deliver an optimal advocacy campaign.

In order to accommodate everyone’s availability, avoid any overlap with your everyday job, and ensure high participation from you and your colleagues, the training will be taking place after working hours, on Thursday, 24th November 2022 from 17:30 to 20:30 CET, in an online format.

We look forward to seeing you in our online advocacy training! 

Discover the Training Agenda here

Register Now

The Meet & Greet the EU series is part of EFA’s 2022 Capacity Building Programme. Following our 2021 Meet & Greet with the EMA on patients’ engagement, this session aims to further develop Member knowledge of the form and function of the European Medicines Agency (EMA), the new EU regulation expanding its mandate, and the entry into force of the Clinical Trials Regulation and what it all means for patients living with respiratory and allergic diseases.

Discover the agenda and Register Now

EFA is pleased to invite you to the upcoming event of the European Parliament Interest Group on Allergy & Asthma, ‘For an EU NCD Initiative that prevents and cares - Connecting the dots for better allergy and asthma health in Europe’, taking place on Thursday 29 September from 14.00 - 15.30 in person at the European Parliament, online participation is also welcome for this event. 

The event will revolve around the recently launched Healthier Together-EU NCD Initiative and its prospects for addressing allergy and asthma, two of the most common chronic non-communicable diseases in Europe. Beyond demonstrating the heavy and diverse health burden of the diseases, especially among children and the youth, the discussions will also aim to present policy proposals for better prevention and care.

Discover the preliminary agenda here.

The event will be hybrid format, held both in the European Parliament and online.

Please note the timing of the event has been changed from 15:00-16:30 to 14:00-15:30

Register now

EFA and the European Allergy and Asthma Youth Parliament is excited to invite young patients to take part in the Young Leadership Training. This capacity building event will take place 29-30th September 2022 in Brussels, Belgium. During these two days, participants will take part in workshops and tours to see up close how the EU operates. They will also skills and understanding in how as young patient advocates, they can have a voice in decision-making to improve the Quality of Life for young allergy and asthma patients across Europe.

• Discover the Preliminary Programme here
• Discover some Practical Information about Brussels. Please note that we will keep updating this document with more information, stay tuned!

Register your interest now.

EFA is pleased to invite you to a Members Re-Union in Rejkyavik, Iceland on 26-27 May 2022, hosted by Members Asthma and Allergy Society of Iceland and Icelandic Lung Association. While we encourage in-person attendance, online attendance will be available for some sessions. 

• Learn about the programme here and
• discover more about Iceland in this practical guide 
• Download the reimbursement form, if you are the delegate travelling to Iceland.

Register Here