EFA cordially invites you to the CURE conference, which takes place on 15 March 2022, 10:00-12:45 and 13:45-15:45 CET.

CURE is an EU Horizon 2020 project that aims to address imbalances in the respiratory microbiome contributing to asthma, thereby fostering improved disease management and even a cure.

The final event promises to be a thrilling exploration of the contributions of the CURE project, the way forward and challenges for phage therapies, innovations and best practices from outside the EU, and also a discussion on the legal and regulatory frameworks for future phage applications.

The MEP Lung Health Group will hold an online event in late January 2022 called ‘Improving lung health through the future European Health Data Space,’ co-organised by EFA and the European Respiratory Society.

Earlier this year, the European Commission launched the initiative to set up a European Health Data Space (EHDS), which recognises the immense benefits that health data sharing can bring to people’s diagnosis, prevention, disease management, and quality of life.

This online event will bring expert lung health and digital health speakers and participants together to discuss pressing matters including:

• The future of EHDS to improve lung health prevention and care
• How digital health technologies can serve respiratory outcomes
• The benefits of digitalisation in enabling self-management
• A best practices case-study on implementing the EHDS.

All organisations interested in lung health and digital health are welcome to attend.

Visit the Breathe Vision website and register for the event here.

In the context of the European Parliament Interest Group on Allergy & Asthma, EFA organises the event “Addressing patient unmet needs in allergy and asthma care” taking place on Thursday 13 January from 13:00 to 14:15 CEST (Brussels).

The event aims to shed light on the patient unmet needs in allergy and asthma care, in view of a patient-centred Pharmaceutical strategy and against the backdrop of persistent challenges exacerbated by the COVID-19 pandemic. The speakers will discuss current challenges at the EU and national level, and propose policy solutions to overcome them for the benefit of patients, boosting access to high-level quality care in Europe.

The event will feature a high-level panel consisting of representatives from the civil society, industry and the EU-level institutions. We will be pleased to welcome all interested groups and entities working in the healthcare field, such as patients, healthcare professionals, payers, primary care organisations and the pharmaceutical sector. REGISTER

We are excited to announce our next online event entitled “Meet and Greet the EU: Patient Involvement in EU Funded Research Projects”, which will take place on 14 December from 13:00 to 17:00 CEST (Brussels).

This event will provide EFA members with the necessary skills to participate in research projects funded by the European Union, helping advance the field of medicine or prevention efforts related to their disease areas.

The Meet and Greet is open to staff, volunteers and members of the Board of EFA members. Non-EFA members are also welcome on a case-by case basis, provided they belong to patient groups active in the field of respiratory disease. REGISTER

We invite you to join the second part of the EFA Young Patient Ambassadors Training, as part of EFA’s Capacity Building, starting on 25 October 17:00-20:00 CEST. This training is organised in connection with the European Allergy and Asthma Youth Parliament set up in 2020.

The training will focus on improving participants’ advocacy and public speaking skills to influence EU decision-making. Participants will put into practice the knowledge acquired in the previous session. It is not mandatory to have attended the first session to take part in October.

This training is open to 20 young patient representatives and healthcare professionals below 35 years old. REGISTER.

We invite you to the EFA Young Patient Ambassadors Training, as part of EFA’s Capacity Building starting on 28th June 17:00-20:00 CEST. This training is organised in connection with the European Allergy and Asthma Youth Parliament set up in 2020.

The training will provide young patient ambassadors with the necessary skills to engage at the European level through the Youth Parliament. Importantly, we included young experts to share their expertise and experiences connecting with young patients and inspiring them.

This training is open to 20 young patient representatives and healthcare professionals below 35 years old. REGISTER.

EFA invites you to join our online training day on 14 June 2021, as part of our 2021 Capacity Building Programme.

The day programme will be dedicated to understanding the role of the European Medicines Agency (EMA), and will provide meaningful input, skills and competences to EFA Members and expert patients from other respiratory diseases interested in the regulatory processes for medicines development.

The Meet and Greet is open to staff, volunteers and members of the Board of EFA members. Non-EFA members are also welcome on a case-by case basis, provided they belong to patient groups active in the field of respiratory disease. REGISTER.

EFA warmly invites our members to attend the Extraordinary and Annual General Meeting of Members and Network Meeting on 27-28 May 2021. The event will take place online.

EFA will also host a ‘Best Practices’ session, where our members will have the opportunity to share recent project success, goals or plans of their organisations.

Registration is open to EFA members. REGISTER.

Join EFA and our partners for the launch of the BREATHE Vision for 2030; a collective initiative driven by European level patient groups and healthcare professionals. Breathe Vision aims to increase awareness of respiratory health, improve lung health care and research, and tackle COVID-19 and its long-term impacts in Europe.

The MEP Lung Health group event, ‘Towards a European Health Union – BREATHE Vision for the future’, will take place January 27, 10h00-11h15 CET. REGISTER.

EFA invites you to join our online training days on 10 and 17 February 2021, as part of our Capacity Building Programme.

The two-day programme, titled “The EU at a policy crossroads: What role for allergy, asthma and COPD patients?”, is designed to increase understanding among EFA patient networks about the policies and opportunities surrounding the disease areas EFA addresses.

The Meet and Greet is open to staff, volunteers and members of the Board of EFA members. Non-EFA members are also welcome on a case-by case basis. REGISTER.