News

European patients propose legislative amendments to the European Health Data Space legislation

14 November 2022
EU
- Digital Health
To have a more patient centric health data space in Europe, EFA together with the European Patients Forum (EPF), has presented decision-makers in the European...

EFA Statement on the Proposal for a Regulation of the European Parliament and of the Council on fluorinated greenhouse gases

09 November 2022
EU
PREVENT, - Air Quality, CARE, - Medicines
The European Federation of Allergy and Airways Diseases Patients’ Associations (EFA) welcomes the ambition of the European Commission (EC) to reduce...

European Commission notice considers EFA proposals on food allergen cross-avoidance

02 November 2022
EU
Food Allergy
- Food Safety
In early 2022, EFA participated in a consultation for a revised European Commission notice on the implementation of Good Hygiene Practices (GHPs) in food...

Call for Tender to Perform Desk Review and Write Report

04 November 2022
CARE
The purpose of this call is to invite tenders for the contract of report writer/consultant that will perform a desk review and draft a patient-friendly...

EFA calls for action on Indoor Air Quality at Gastein Forum

02 November 2022
EU
PREVENT, - Air Quality
© Image by European Health Forum Gastein via Flickr. On 29 September, EFA participated in a high-level discussion organised by...

Kick-off conference of the Health Technology Assessment (HTA) EU regulatory work

06 October 2022
EU
CARE, - Healthcare
In June 2022, the European Commission Directorate General for Health and Food Safety organised an annual conference on the Health Technology Assessment...

EFA joins new Horizon Project: TOLIFE

06 October 2022
EU
COPD
INFORM, - Digital Health
Chronic obstructive pulmonary disease (COPD) is a complex chronic condition, characterised by exacerbations that have an impact on the disease progression...

EFA highlights risks of soy lecithin cross-contamination in a letter to the European Commission

06 October 2022
EU
Food Allergy
PREVENT, - Food Safety
In July, EFA addressed to the European Commission DG SANTE a letter highlighting reports on accidental contamination of soy lecithin with peanut protein...

EFA launches the #AtopicalLives photoseries with new atopic eczema patients’ portraits

05 October 2022
Europe
Allergy
INFORM
Atopic eczema is much more than a skin disease, it affects the whole body of the patients, their life and their energy to face life. Often dismissed...

World Atopic Eczema Day: EFA community showed the inside of atopic eczema

05 October 2022
Europe
Allergy
INFORM
Atopic eczema is one of the most prevalent skin diseases in the world and one of the most under-recognised. Often dismissed as “just a skin condition,”...

EFA presented the burden of atopic eczema in Europe at EADV Congress

05 October 2022
Europe
Allergy
INFORM
On 7-10th September, an EFA delegation attended Congress was the annual opportunity for EFA to liaise with the scientific community, learn and get up...

EFA brought the asthma and COPD expectations of digital health to HIMSS 2022 (DIG_IT)

05 October 2022
Europe
Asthma , COPD
INFORM, - Digital Health
In May this year EFA had the opportunity to attend the European Health Conference & Exhibition (HIMMS) for the first time, as a newly established partner...

EFA calls on the EU for a strong support of health policies through 2023

05 October 2022
EU
PREVENT, CARE, - Healthcare
EFA contributed to the consultation on the EU4Health Programme budget with calls for patient-centred investment in prevention and care for respiratory...

EFA recommendations to the Codex revision Revision of allergen labelling in the General Standard for the Labelling of Prepacked Food (GSLPF)

05 October 2022
International
Food Allergy
PREVENT, - Food Safety
Between May and July, the Codex Alimentarius Commission (CAC), a WHO-FAO body setting international food standards, organised a stakeholder consultation...

EFA response to the public consultation on a European Health Data Space (EHDS)

05 October 2022
EU
CARE, - Digital Health
On 3rd May 2022, the European Commission presented its proposal for a Regulation on the European Health Data Space (EHDS), an initiative which aims at...

EFA participated in the International Respiratory Coalition summit

05 October 2022
International
Asthma , COPD
INFORM
In June, EFA participated in the International Respiratory Coalition (IRC) summit organised by the European Respiratory Society (ERS). The IRC is a new...

EFA participates in EMA workshop on integrating patient experience in drug development

05 October 2022
EU
CARE, - Healthcare
In September, the European Medicines Agency (EMA) organised the first in-person multi-stakeholder workshop since the pandemic on a crucial topic for...

GUIDE Asthma: EFA launches new survey on asthma patient resources

05 October 2022
Europe
Asthma
CARE
In 2022, EFA is focusing on defining gaps in asthma patients and carers knowledge and information to empower asthma patients’ in better self-management...

EFA Isabel Proaño elected as Board Member of the European Patient’s Forum

05 October 2022
Europe
INFORM
The allergy and respiratory community is honoured to have EFA nominee elected to join the European Patients’ Forum (EPF) Board for a period of two...

European Commission responds to Parliamentary Question on allergy prevention, support and research policies

05 October 2022
EU
Allergy
INFORM, - Interest Group
In the context of the highly anticipated 'Healthier Together – EU Non‑Communicable Diseases' (NCDs) initiative and the Commission’s pledge to work...