EFA Advocacy Training: How patient associations can promote change through successful advocacy campaigns
EFA’s Capacity Building programme aims to deepen EFA Members’ knowledge and skills on techniques to create strong positive impacts on policy, law,...
European Respiratory Society Congress 2022: EFA highlights for asthma and COPD patients
EFA sent a delegation of five people to the 2022 European Respiratory Society (ERS) Congress, hosted in Barcelona, Spain from 4-6 September. The delegation...
EFA Report: Interest Group on Allergy and Asthma event for an EU NCD Initiative achieves better allergy and asthma health in Europe
The European Parliament Interest Group on Allergy & Asthma organised in September a policy event: “For an EU NCD Initiative that prevents and...
European patients propose legislative amendments to the European Health Data Space (EHDS) legislation
To have a more patient centric health data space in Europe, EFA together with the European Patients Forum (EPF), has presented decision-makers in the European...
EFA Statement on the Proposal for a Regulation of the European Parliament and of the Council on fluorinated greenhouse gases
The European Federation of Allergy and Airways Diseases Patients’ Associations (EFA) welcomes the ambition of the European Commission (EC) to reduce...
European Commission notice considers EFA proposals on food allergen cross-avoidance
In early 2022, EFA participated in a consultation for a revised European Commission notice on the implementation of Good Hygiene Practices (GHPs) in food...
Call for Tender to Perform Desk Review and Write Report
The purpose of this call is to invite tenders for the contract of report writer/consultant that will perform a desk review and draft a patient-friendly...
EFA calls for action on Indoor Air Quality at European Health Forum Gastein (EHFG)
© Image by European Health Forum Gastein via Flickr.
On 29 September, EFA participated in a high-level discussion organised by...
Kick-off conference of the Health Technology Assessment (HTA) EU regulatory work
In June 2022, the European Commission Directorate General for Health and Food Safety organised an annual conference on the Health Technology Assessment...
EFA joins new Horizon Project: TOLIFE
Chronic obstructive pulmonary disease (COPD) is a complex chronic condition, characterised by exacerbations that have an impact on the disease progression...
EFA highlights risks of soy lecithin cross-contamination in a letter to the European Commission
In July, EFA addressed to the European Commission DG SANTE a letter highlighting reports on accidental contamination of soy lecithin with peanut protein...
EFA launches the #AtopicalLives photoseries with new atopic eczema patients’ portraits
Atopic eczema is much more than a skin disease, it affects the whole body of the patients, their life and their energy to face life. Often dismissed...
World Atopic Eczema Day: EFA community showed the inside of atopic eczema
Atopic eczema is one of the most prevalent skin diseases in the world and one of the most under-recognised. Often dismissed as “just a skin condition,”...
EFA presented the burden of atopic eczema in Europe at EADV Congress
On 7-10th September, an EFA delegation attended Congress was the annual opportunity for EFA to liaise with the scientific community, learn and get up...
EFA brought the asthma and COPD expectations of digital health to HIMSS 2022 (DIG_IT)
In May this year EFA had the opportunity to attend the European Health Conference & Exhibition (HIMMS) for the first time, as a newly established partner...
EFA calls on the EU for a strong support of health policies through 2023
EFA contributed to the consultation on the EU4Health Programme budget with calls for patient-centred investment in prevention and care for respiratory...
EFA recommendations to the Codex revision Revision of allergen labelling in the General Standard for the Labelling of Prepacked Food (GSLPF)
Between May and July, the Codex Alimentarius Commission (CAC), a WHO-FAO body setting international food standards, organised a stakeholder consultation...
EFA response to the public consultation on a European Health Data Space (EHDS)
On 3rd May 2022, the European Commission presented its proposal for a Regulation on the European Health Data Space (EHDS), an initiative which aims at...
EFA participated in the International Respiratory Coalition summit
In June, EFA participated in the International Respiratory Coalition (IRC) summit organised by the European Respiratory Society (ERS). The IRC is a new...
EFA participates in EMA workshop on integrating patient experience in drug development
In September, the European Medicines Agency (EMA) organised the first in-person multi-stakeholder workshop since the pandemic on a crucial topic for...