Capacity Building Project update (November 2014)

Projects

EFA Patients’ Digital Prize for asthma and COPD digital care innovators

EFA granted a reward to digital health technologies that benefit and centre asthma and COPD patients through their design, accessibility and efficacy. A prestigious jury assessed the pillars for a successful tool, as well as the ways in which innovators have included digital collaboration and co-creation approaches between patients, healthcare providers and solutions developers at the core of their work.

Atopic Eczema Consensus Europe

EFA is running a project to fill the awareness gap and develop a Consensus among the burden of Atopic Eczema/Dermatitis for Patients.

3TR

3TR is an IMI funded project studying the molecular pathways and mechanisms linked to response and non-response to therapy in different immune-mediated, allergic and inflammatory diseases, including asthma and COPD.

Find out more!

Campaigns

World Atopic Eczema Day

The European Atopic Eczema Community will come together on World Atopic Eczema Day 2024 to amplify the voices of those living with atopic eczema through the #AtopicEczemaUnfiltered campaign. The 2024 World Atopic Eczema Day toolkit and resources are now available!

Join the movement!

#KeepBreathing

The time is now for a lung health policy that helps Europe to Keep Breathing.

Learn more

Endorse the Breathe Vision for 2030

The Breathe Vision for 2030 outlines shared aims by respiratory partners to increase attention towards respiratory health, while also supporting the general awareness and understanding of lung disease in society.

Show your support to the Breathe Vision for 2030!

Take Action

#ShowLeadership

#ShowLeadership is a pan-European campaign encouraging policymakers, stakeholders and individuals to take action to improve the situation of allergy, asthma and COPD patients in Europe. Only together, change is possible

Take action!

Severely Asthma

Severely, ASTHMA! is a video series portraying six severe asthma patients and their families throughout Europe, each bringing a unique insight on diagnosis, care, social and family life, participating in research and living with air pollution.

Watch now!

Publications

Raising standards of care for COPD

EFA launched a new report - 'Raising standards of care for chronic obstructive pulmonary disease (COPD)'. The report examines care in 19 European countries, revealing critical gaps in prevention, diagnosis, and treatment and calls for urgent regional policy action to reduce economic and social burden of COPD in Europe.

Annual Report 2023

Discover the 2023 Annual Report: a comprehensive overview of the patients' agenda for allergy and airways diseases.

Read the report online

EFA launches “A vision for EU action on lung health 2024-2029” together with the European Lung Health Group

EFA and The European Lung Health Group call on EU policymakers to address lung health in a new publication. #KeepBreathing: A vision for EU action on lung health 2024-2029

European Consensus Report 2022: The Burden of Atopic Eczema

Following one year of in-depth discussions around the reality of Atopic Dermatitis/Eczema (AD/E), the Atopic Eczema Consensus Committee launched their consensus on the struggle of AD/E patients in Europe: ‘The Burden of Atopic Eczema / Dermatitis - European Consensus Report 2022’.

Read the report

EFA launches AboutAsthma.org website to help asthma patients in Europe

EFA and the Global Allergy and Airways Patients Platform (GAAPP) launched an educational website on asthma for patients and carers – AboutAsthma.org. The website serves as a comprehensive patient guide to asthma and provides science-based information and tips to patients and carers across five areas: asthma symptoms, attacks, care, life with asthma and help.

Learn more

Meeting with RESPIRA, Portuguese EFA Member

On November 15,EFA representatives travelled to Lisbon to meet with 14 members of EFA’s member organisation RESPIRA, including recently appointed EFA Board Member Isabel Saraiva. RESPIRA is the national Portuguese Association of people with Chronic Obstructive Pulmonary Disease (COPD) and other Chronic Respiratory Diseases that is run by 10 volunteers. This young organization, founded in 2007, aims at providing support to Portuguese people with COPD and other chronic respiratory diseases. RESPIRA president, Luísa Branco started the meeting by welcoming the attendants. This was followed by a round of personal introductions where all participants informed EFA representatives of their personal experiences as patient and carers and their involvement in RESPIRA. Given the economic downturns in the current Portuguese environment, RESPIRA indicated an interest in enhancing their expertise to build partnerships. In that sense, the meeting addressed how to fundraise opportunities, how to better cooperate with other NGO’s and how to inspire volunteers. EFA Corporate and Fundraising Manager Antje Fink-Wagner analysed the current structure of the organization and provided recommendations to RESPIRA on how to use all its potential. During the second half, participants discussed how to create opportunities for fundraising, such as potential partners, ways to engage in projects and sustainable corporate partnerships. The second session served the participants to note the association weaknesses and strengths which led the attendants to identify new objectives of interest to RESPIRA and its members. During the last part of the afternoon session EFA Project Manager Giuseppe De Carlo presented ways for RESPIRA to inspire and involve volunteers. The meeting was concluded with RESPIRA President Luísa Branco thanks to EFA for the analysis provided. EFA would like to thank all participants that took part in these past Capacity Building Meetings and will take all their comments and suggestions into account when taking further steps within the framework of the Capacity Building Project.