We wish to report on the second TC of the Digital Health Topic Group that was held by the European Medicines Agency organised in January. As Members of the group, EFA will be contributing to the task forces on eHealth, social media, and Real World Evidence because all three are crucial for asthma, allergy and COPD patients. More specifically, we will bring our input to the agency’s work with ideas, comments and examples of best practices. The group’s work has kicked off with the preparation of an EMA workshop on digital media that will take place within the EMA Patients and Consumers and Healtchcare professionals Working Parties in April and with a follow-up on the recommendations for the use of social media for medicine regulation, pharmacovigilance and safety communications.
Projects
EFA Patients’ Digital Prize for asthma and COPD digital care innovators
EFA granted a reward to digital health technologies that benefit and centre asthma and COPD patients through their design, accessibility and efficacy. A prestigious jury assessed the pillars for a successful tool, as well as the ways in which innovators have included digital collaboration and co-creation approaches between patients, healthcare providers and solutions developers at the core of their work.
Atopic Eczema Consensus Europe
EFA is running a project to fill the awareness gap and develop a Consensus among the burden of Atopic Eczema/Dermatitis for Patients.
3TR
3TR is an IMI funded project studying the molecular pathways and mechanisms linked to response and non-response to therapy in different immune-mediated, allergic and inflammatory diseases, including asthma and COPD.
Campaigns
World Atopic Eczema Day
The European Atopic Eczema Community will come together on World Atopic Eczema Day 2024 to amplify the voices of those living with atopic eczema through the #AtopicEczemaUnfiltered campaign. The 2024 World Atopic Eczema Day toolkit and resources are now available!
#KeepBreathing
The time is now for a lung health policy that helps Europe to Keep Breathing.
Endorse the Breathe Vision for 2030
The Breathe Vision for 2030 outlines shared aims by respiratory partners to increase attention towards respiratory health, while also supporting the general awareness and understanding of lung disease in society.
Show your support to the Breathe Vision for 2030!
#ShowLeadership
#ShowLeadership is a pan-European campaign encouraging policymakers, stakeholders and individuals to take action to improve the situation of allergy, asthma and COPD patients in Europe. Only together, change is possible
Severely Asthma
Severely, ASTHMA! is a video series portraying six severe asthma patients and their families throughout Europe, each bringing a unique insight on diagnosis, care, social and family life, participating in research and living with air pollution.
Publications
Raising standards of care for COPD
EFA launched a new report - 'Raising standards of care for chronic obstructive pulmonary disease (COPD)'. The report examines care in 19 European countries, revealing critical gaps in prevention, diagnosis, and treatment and calls for urgent regional policy action to reduce economic and social burden of COPD in Europe.
Annual Report 2023
Discover the 2023 Annual Report: a comprehensive overview of the patients' agenda for allergy and airways diseases.
EFA launches “A vision for EU action on lung health 2024-2029” together with the European Lung Health Group
EFA and The European Lung Health Group call on EU policymakers to address lung health in a new publication. #KeepBreathing: A vision for EU action on lung health 2024-2029
European Consensus Report 2022: The Burden of Atopic Eczema
Following one year of in-depth discussions around the reality of Atopic Dermatitis/Eczema (AD/E), the Atopic Eczema Consensus Committee launched their consensus on the struggle of AD/E patients in Europe: ‘The Burden of Atopic Eczema / Dermatitis - European Consensus Report 2022’.
EFA launches AboutAsthma.org website to help asthma patients in Europe
EFA and the Global Allergy and Airways Patients Platform (GAAPP) launched an educational website on asthma for patients and carers – AboutAsthma.org. The website serves as a comprehensive patient guide to asthma and provides science-based information and tips to patients and carers across five areas: asthma symptoms, attacks, care, life with asthma and help.
