- Patients are driving the future of Severe Asthma research through ERS SHARP
- SHARP is a Clinical Research Collaboration promoted by the European Respiratory Society. It stands for Severe Heterogeneous Asthma Research Collaboration, Patient centred and it aims to facilitate stu ...
- The Swiss Pulmonary League launches 11 learning video clips for children with asthma in German, French and Italian
- EFA Member, the Swiss Pulmonary League, has launched eleven learning video clips to help children with asthma manage better their condition. It complements traditional education and helps affected chi ...
- Online chat launched for allergy and asthma patients in Sweden
- EFA's Member, the Asthma and Allergy Association of Sweden, has a web service called AllergiSmart, targeting people who have or are close to someone with asthma, allergy or other type of hypersensitiv ...
- First European Alpha-1 Awareness Day
- On the 25th of April, EFA’s Roberta Savli took part in an EU Roundtable on Alpha-1 Antitrypsin Deficiency (a genetic disorder that can cause serious lung or liver disease, including COPD), marking the ...
- Campaign on travelling with allergies in the UK
- This year the World Allergy Week took place from the 23d of April to the 29th of April, with many patient initiatives to raise awareness about allergies. EFA Member Allergy UK focused on the topic o ...
- PRESS RELEASE: World Asthma Day 2018
- Life is possible for patients with severe asthma Provided that they have accurate diagnosis Brussels, 1st May 2018 – WORLD ASTHMA DAY – Today European asthma patients are joining voices under the ...
- Some patients with asthma are affected… SEVERELY!
- In March we travelled to the UK and kicked-off our new project “Severely, Asthma!”, a video series that explores the different issues impacting the life of severe asthma patients. Severe asthma is sub ...
- EU Summit on airways diseases, air pollution and mobile health
- Digital tools are already part of our daily life, whether they are mobile applications or connected machines. In health, digital tools can play a key role in allowing guided self-management, leading t ...
- EFA supports the European Association of Hospital Pharmacists statement
- Last month EFA supported the European Statements of Hospital Pharmacy, the joint objectives formulated by the European Association of Hospital Pharmacists (EAHP) following a 18-month review process. W ...
- EFA highlights the food labelling and nutrition needs of allergy and COPD patients at first EPF Nutrition task force
- Last 23rd of March, EFA took part in the first EU patients’ task force on nutrition organised by the European Patients’ Forum. The kick-off of this discussion platform is of particular interest for EF ...
- EMA update on medicines for COPD and eczema
- The European Medicines Agency Committee for Medical Products for Human Use (CHMP), responsible for human medicines, has granted a positive opinion on the medical products Riarify and Trydoni ...
- Sign the EU Manifesto on Influenza Vaccination
- On March 12, EFA launched a 10-point Manifesto calling the EU for more action to increase seasonal influenza vaccination coverage rates in Europe. Influenza is annually responsible for 650 thousand de ...
- EU launches “Chemicals in our life” multilingual website
- In March the European Chemicals Agency (ECHA) launched a new dedicated website to inform consumers about the benefits and risks of chemicals in their everyday lives. While 65% of Europeans are worri ...
- MyAirCoach will be presented at the most influential 2018 digital health conference
- MyAirCoach is almost a reality! The consortium will participate at HIMSS & HEALTH 2.0 conference in Spain next May 27-29, the most influencial eHealth at EU level that will help expose this soluti ...
- Asthma Society of Ireland phone line helped 70% of those under 50 to avoid missing school or work as a result of their asthma
- EFA Member the Asthma Society of Ireland FREE Adviceline service has showed extensive positive impacts for service users. The recent partnership research showed that 70% of service users aged 50 years ...
- Sweden is closer to ban smoking outdoors, as asked by patients
- It is well recognized today that tobacco smoking increases the risk of developing diseases like respiratory tract infections, asthma and chronic obstructive pulmonary disease (COPD). But law has been ...
- FFAAIR brings the patient perspective and needs to major respiratory congresses in France
- 2018 has started with a bunch of important events devoted to respiratory diseases in France, and EFA Member FFAAIR has been an active member in many of them: the Franchophone Lung Society Congress cel ...
- Take the survey: does your lung disease affect family planning and pregnancy?
- The European Respiratory Society (ERS) and the Thoracic Society of Australia and New Zealand (TSANZ) are looking for information to understand how people with a lung condition are currently cared for ...
- EFA launches Atopic Eczema working group
- The needs and lives of patients living with atopic eczema are very specific sometimes, that is why at EFA we are happy to announce the launch of a working group on Atopic Eczema. The working gro ...
- We are 230 health organisations asking the EU for more health action
- Early 2017, the President of the European Commission Jean-Claude Juncker presented a White Paper on the future of Europe, outlining 5 potential scenarios. In these scenarios, option 4 considers “doing ...