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FENAER participates at the Spanish Respiratory Society Congress
EFA Spanish Member FENAER brought the perspective of respiratory patients to the SEPAR Pacientes meeting. Mª Emilia Carretero, FENAER Board Member highlighted that patient participation should be embe ...

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Respira turns 10!
EFA Member the Portuguese COPD patients association RESPIRA has celebrated its 10th anniversary in Lisbon on the 23rd February. During the meeting they presented RESPIRA’s growth and activities during ...

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The first EP event of the year put the focus on health: Act. Believe. Care.
Chronic respiratory diseases need public policy solutions at European level to respond to increasing disease prevalence, unmet treatment needs, high cost of hospitalisations, work and school sick-leav ...

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Great satisfaction among EFA Capacity Building participants
EFA’s 2016 Capacity Building project ended in January 2017 with a last session held in Kent, United Kingdom, together with our member Allergy UK. In 2016 we also visited other EFA members in Portugal, ...

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Our response to the European Commission HTA consultation
The European Commission has launched a consultation on strengthening EU cooperation on Health Technology Assessment (HTA), a specialty to measure the added value of a new health technology in comparis ...

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MyAirCoach will be tested in 2017
In November 2016, we met in Manchester with our partners of the Horizon 2020 project myAirCoach to track the status quo in all work-packages, the main results achieved in 2016 and to plan the third an ...

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IMI looks into what patients bring to medicines
The Innovative Medicines Initiative launched in December its 10th call for proposals under IMI 2. We especially welcome one of the topics of this call: “Patient Perspectives in medicines lifecycle”. T ...

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PRESS RELEASE: Smartphones could improve young people’s health literacy and adherence
2016 European Health Forum Gastein (Austria) – Asthma is the most common chronic disease in childhood. Today, 30 million European children and adults below the age of 45 years old have asthma and 15,0 ...

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Our programme at ERS Congress
The 26th International Congress of the European Respiratory Society, the largest meeting in the world in the respiratory field, with more than 20.000 participants expected, is starting this Saturday i ...

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EFA’s research on asthma in adolescence will be presented in Gastein
Our latest survey on adherence to treatment of young patients with asthma will be presented at the European Health Forum Gastein (EHFG), the most influential EU health policy conference that will take ...

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Is pollen a pollutant? Our views at the European Aerobiology Symposium
EFA was invited to open the European Symposium on Aerobiology celebrated in Lyon from the 18th-22nd July. The event was organised by the European Aerobiology Society and aimed to share latest research ...

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More research into earlier diagnosis – Our response to H2020 consultation
During the summer, EFA had the chance to provide feedback on the development of the work programme 2018-2020 of Horizon 2020 (the European Union’s Research and Innovation Framework Programme) in respo ...

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Simplified clinical trials results to inform patients – Our response to the EC consultation
In August we sent our comments to the European Commission open consultation on the summary of results of clinical trials for laypersons. This consultation follows the new clinical trials regulation  ...

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Call to Croatia and Serbia to reinforce tobacco control
EFA co-signed with others 29 NGOs an open letter to the President and Government of the Republic of Croatia and of Serbia expressing deep concerns regarding the close relations between tobacco industr ...

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New consultation on the security of tobacco products – Open!
EFA, in partnership with ENSP, is planning to reply to the open consultation with the purpose to collect inputs for implementing an EU system traceability and security features, as required under Arti ...

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Added-value of patient organisations – EPF survey
EFA Director Susanna Palkonen is actively participating at EPF Working Group on sustainability of patient organisations, which drafted a survey to demonstrate the contribution of patient organisations ...

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Health and environment associations mobilized against TTIP once again
In July, more than 60 non-profit associations sent a letter to the President of the European Parliament Martin Schulz arguing that the European Commission is failing to comply with Parliament’s 2015 R ...

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European Association of Systems Medicine Conference
The European Association of Systems Medicine (EASyM) is organisation its first conference on October 26th-28th in Berlin, that will gather scientists from all over Europe, including physicians, biolog ...

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Vote for myAirCoach to win the EC Innovation Radar Prize
The European Commission has listed the myAirCoach device as one of the high potential innovations in EU-funded research and innovation projects for the Innovation Radar Prize 2016. myAirCoach partne ...

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New treatment to reduce asthma severity – Promising AirPROM study
The University of Leicester has led a ground-breaking study, funded by Novartis Pharmaceuticals, National Institute for Health Research (NIHR) and EU-funded project AirPROM, on a new drug that may in  ...

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