HTA Stakeholder Forum discusses patients quality of life and involvement
On April 11th, EFA participated in the European Network for Health Technology Assessment (EunetHTA) annual stakeholder forum in Amsterdam. The meeting...
Allergia-, Iho- ja astmaliitto celebrates 50th anniversary
EFA Member Allergia-, Iho- ja astmaliitto (Finnish Allergy, Skin and Asthma Federation) celebrates this year its 50th anniversary and has therefore...
Allergy UK: Allergy Awareness Week
On April 29th, EFA Member Allergy UK kicks off its Allergy Awareness Week, focusing on “Air Quality – the allergens around us”. The patient organisation...
EU Coalition for Vaccination unites for confidence
The first meeting of the ‘EU Coalition for Vaccination’, convened by the European Commission Directorate General on Health and Food Safety (DG SANTE)...
EFA at Land Baden-Württemberg event on personalised medicine
Personalised medicine is both a big opportunity for patients but also a necessity for many people living with a chronic diseases whose severity does not...
WHO urges stronger action to reduce deaths from Non-Communicable diseases in Europe
On April 9th and 10th, the World Health Organisation (WHO) held a High-Level Conference on Non Communicable Diseases (NCDs) in Turkmenistan. The discussions...
EFA launches #ShowLeadership campaign
Living with allergies and airways diseases has become a daily burden for over 200 million people in Europe. The drastic increase of people living with...
Delivering patient value discussed at EU Parliament
To mark the 13th European Patients’ Rights Day, EFA attended the conference on ‘Delivering patient value throughout the healthcare system’ organised...
European Parliament Interest Group on Allergy and Asthma launches a Blueprint
On 20th March, the European Parliament Interest Group on Allergy and Asthma, co-run by EFA and EAACI, organised at the European Parliament a Breakfast...
EPF: EuropeforPatients campaign
The European Patients Forum (EPF), of which EFA is a long-standing member, has launched a campaign ahead of the EU elections called ‘europeforpatients’....
Rare diseases: A new platform to support better diagnosis and treatment
In light of the Rare Disease Day in February, the European Commission has launched a new online knowledge-sharing platform to support better diagnosis...
European Commission Manual for patients: Patients’ rights to accessing healthcare
The European Commission Directorate General for Health and Food Safety (DG SANTE) has published a manual for patients regarding their rights to access...
Asthma Allergy Denmark: Hay-fever and allergy high-school 2019
EFA Member Astma Allergi Denmark organises a Hay-fever and Allergy High School. During the event, attendees can ask questions and get advice from Astma-Allergy...
New COPD development prediction: the ALEC Project
Although COPD has long been viewed as a predominantly smoking-related disease, there is increasing awareness that lifestyle and the environment contribute...
EFA continues to be the only patient organisation working with European Chemicals Agency
The European Chemicals Agency (ECHA) organised its annual Accredited Stakeholder Workshop on 21 March 2019 in Brussels to mainly discuss ECHA’s Strategic...
New IMI Project: 3TR
Despite the wide availability of treatments for autoimmune, inflammatory and allergic diseases, the response to therapy and the disease progression is...
Falsified medicines: New rules to enhance patients' safety
Falsified medicines are fake medicines that are dispensed as real, authorised, medicines. In reality, falsified medicines may contain inactive molecules,...
First guidance on new rules for certain medical devices by European Medical Agency
The European Medicines Agency (EMA) has published a first set of guidelines to help prepare for obligations coming from the new EU legislation on medical...
Patient Access Partnership launches the Future of Healthcare in the EU at the EP
EFA’s Susanna Palkonen, in her role as the chairperson of the Patient Access Partnership, launched a widely supported Statement on the Furure of Health...
European Parliament supports the adoption of an Indoor Air Quality Performance Certificate
On March 13th, the European Parliament plenary adopted the motion for a resolution ‘Clean Air for All: A Europe that Protects’, an initiative put forward...