EFA will participate this September in two leading respiratory and dermatology conferences, where we will expose our projects and bring our patients perspective to those fields. From the 9 to 13 September, we assist to the European Respiratory Society Congress in Milan and from 13 to 17, we will be in in Geneva, Switzerland, at the European Academy of Dermatology and Venereology (EADV) International Conference.
We are back from holidays, and our desire to continue improving patients’ lives can’t wait. This month, we are going to the European Respiratory Society Congress 2017 in Milan (Italy) 9 to 13 September. The Congress features the latest advancements in clinical management and the forefront research , the best researche on respiratory diseases prevention and treatment.
See our agenda and main highlights for both Congresses. We will be very happy to meet you if you pass by our stand at the World Village!
Day |
Activities/Meetings |
Time |
Venue |
Speakers (yes/no) |
Saturday 9 - Monday 11 | EFA projects - hot desk | 8:30 -17:30 | World Village | Yes |
Saturday 9 | Patients Organisations' Network | 10:00 - 17:30 | Yellow (North) | Yes, EFA Projects Manager, Giuseppe de Carlo |
Saturday 9 | ERS Primary Care Conference | 11:30 – 13:00 | Black (North), ERS Conference Centre | Yes, EFA president Mikaela Odemyr |
Sunday 10 | ELF advocacy group | 10:30 – 11:30 | (under registration) | Yes, EFA Projects Manager, Giuseppe de Carlo |
Sunday 10 | Digital Health Symposium - myAirCoach | 14:45 – 16:45 | Beige (South) | No |
Sunday 10 | ELF Patient Organisation Conference | 13:00 – 14:30 | (under registration) | No |
Sunday 10 | ELF Patient Organisation Conference | 14:30 – 15:30 | (under registration) | No |
Tuesday 12 | World Village - COPD Move presentation | 13:00 – 13:30 | World Village | Yes, EFA Projects Manager, Giuseppe de Carlo |
Wednesday 13 | COPD Global conference | Full day | External to ERS - Hilton Double Tree | No |
Mikaela Odemyr, EFA’s president, will give the patients perspective during the primary care conference day.
EFA will also represent COPD patients by exposing our new Exercise Tutorial for COPD patients video, included in our COPDMove project project in our stand and under an official presentation ‘Changing the perception of COPD: COPD MOVE! Lungs with no strings attached at the World Village. The MyAirCoach project will be featured in a symposium on digital health were. You can check the whole ERS programme here.
We are also excited to assist to the European Academy of Dermatology and Venereology (EADV) International Conference in Geneva, (Switzerland), from 13 – 17 September 2017. We will introduce EFA and promote our new and flagship project on Atopic Eczema that has just started. Before summer we had a meeting with EADV's office in Brussels and look forward to a close and long standing partnership.
EFA is one of the patient representatives of this year congress, which main topic focuses on “Clinical immunology: The new immunotherapies“. Different sessions of different formats will cover the important fields in dermatology and venereology, such as allergic, autoimmune and autoinflammatory diseases, immunodeficiencies, as well as the immunotherapies of infectious and malignant diseases.
EFA’s new project in this field , through the development of the first European survey to assess the life of patients with severe atopic eczema.
The aim is to raise awareness about a disease that has for long been dismissed as a superficial skin disease and to highlight the burden of the disease, the quality of life and the psycho social and economic implications AE has on the lives of patients and their families.
With this survey that will be conducted in 9 EU countries, we hope to fill that gap in Europe, help to patients with their disease and the lay public, physicians and the healthcare community to better understand atopic eczema and its’ impact on the lives of patients who suffer from this socially isolating disease.
Day |
Activities/Meetings |
Time |
Venue |
Speaker yes/no |
||||||
Saturday 9, Sunday 10 and Monday 11 |
EFA projects exposed on oir hot desk |
8:30 -17:30 |
World Village |
yes |
||||||
Saturday 9 |
Patients Organisation Network |
10:00 - 17:30 |
Yellow (North) |
YES |
||||||
Saturday 9 |
ERS Primary Care |
11:30 – 13:00 |
Black (North), ERS Conference Centre |
YES |
||||||
Saturday 9 |
Novartis Open Dialogue |
14:00 |
External to ERS -UNA Hotel Scandinavia, vie Fauché, 15 |
NO |
Sunday 10 |
ELF advocacy group |
10:30 – 11:30 |
TBC |
YES |
Sunday 10 |
Digital Health Symposium |
14:45 – 16:45 |
Beige (South) |
NO |
Sunday 10 |
ELF Patient Organisation Conference |
13:00 – 14:30 |
TBC |
|
Sunday 10 |
ELF Patient Organisation Conference |
14:30 – 15:30 |
TBC |
|
Monday 11 |
GSK Medical Education on Salford Lund Study for Patients organizations |
9:00 – 10:00 |
External to ERS - Milan Melia Hotel |
NO |
Tuesday 12 |
COPD Move presentation |
13:00 – 13:30 |
World Village |
YES |
Wednesday 13 – Thursday 14 |
COPD Global conference |
Full day |
External to ERS - Hilton Double Tree |
YES |