News
03 June 2021
Europe
Allergy

In the past years, EFA has been vocal in advocating change for all people living with atopic eczema in Europe. One of our most relevant contributions has been the biggest-ever Quality of Life survey on severe atopic eczema, published in 2018, a patient reported outcome measurement that surveyed almost 2,000 patients from 9 European countries. The resulting report “Itching for Life” was a breakthrough piece that sheds light into the life and economic costs encountered by atopic eczema patients.

Despite growing awareness and advancement around skin conditions, the burden atopic eczema patients endure each day is not sufficiently recognised, nor equal. It implies pain, isolation and economic costs that result from the gap in consensus around multidisciplinary care approaches based on needs that could address the impacts patients face in Europe. Awareness around these issues is currently only acknowledged among the atopic eczema community.

The lack of a strong consensus on atopic eczema burden in Europe from the healthcare community leads to a persisting approach to give low priority to atopic eczema as a serious chronic disease. At EFA we seek to change this situation.

Creating a consensus across Europe

In 2021, EFA is running a project to fill the awareness and care gaps and develop a Consensus on the burden of Atopic Eczema/Dermatitis for Patients. Such an endeavour will consist in gathering 15 key opinion leaders from the atopic eczema community (patients, patients’ representatives and multidisciplinary healthcare professionals) to discuss and build common ground on the social burden caused by Atopic Eczema by showing the gaps. These opinion leaders form the Committee which shared expert advice on the challenges faced by atopic eczema patients and potential solutions.

The result of this project will be a report that will serve as a key, regional, advocacy tool for the community patients and healthcare professionals, and stakeholders, to develop the voice and joint position to change patients’ access to quality of care based on the real burden of atopic eczema.

 

Members of the Committee of Atopic Eczema Consensus Europe project:
 
Name   Position   Country
Dr. Elizabeth ANGIER   Clinical Director, Primary Care - West Hampshire Clinical Commissioning Group - University of Southampton   United Kingdom
Ms. Joana CAMILO   Founding President of the Portuguese Association of Atopic Dermatitis (ADERMAP) and Executive Director of Creating Health   Portugal
Ms. Ozlem CEYLAN   Founding President of Living with Allergy Association   Turkey
Prof. Mette SONDERGAARD DELEURAN   Chairman, MD, DMSc, Department of Dermatology - University of Aarhus   Denmark
Prof. Jan GUTERMUTH   Chairman of the Department of Dermatology & Head Skin Immunology & Immune Tolerance Research Group - University Hospital Brussels    Belgium
Prof. Swen Malte JOHN   Chairman of the Department of Dermatology, Environmental Medicine - University of Osnabrueck   Germany
Ms. Tina MESARIC, PhD   PhD, Project leader - Institute Atopika   Slovenia
Prof. Carle PAUL   Full Professor and former chairman, Department of Dermatology at Larrey Hospital - CHU Toulouse and Paul Sabatier University, Past President European Academy of Dermatology and Venerology   France
Ms. Sibylle PLANK-HABIBI   Head of Dietitian Team, Department of Dermatology and Allergology - Vital Klinik Alzenau   Germany
Ms. Gitte RASMUSSEN   Clinical Nurse Specialist, MScN, Department of Dermatology and PhD student - Aarhus University Hospital   Denmark
Prof. Johannes RING   Professor and former Chairman of the Department of Dermatology and Allergology - Technical University of Munich (TUM)   Germany
Dr. Esther SERRA BALDRICH   Deputy Physician Head of the Skin Immunoallergic Diseases, Dermatology Service - Hospital de Sant Pau, Barcelona   Spain
Ms. Snežana ŠUNDIC VARDIC   President of Allergy and Me   Serbia
Prof. Zsuzsanna SZALAI   Leader of the Department of Peadiatric Dermatology - Heim Pal National Children's Institute Budapest   Hungary
Prof. Andreas WOLLENBERG   Professor and Head of Conservative and Pediatric Dermatology Unit, Department of Dermatology - Ludwig-Maximilian University, Munich (LMU)   Germany

 

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The EFA Team