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Advocacy

 

World Atopic Eczema Day 2024: #AtopicEczemaUnfiltered

 

 

European Atopic Eczema Consensus Project 2021 

The European Atopic Eczema Consensus Report 2022 is the result of a project EFA ran in 2021-2022. The report is the outcome of the discussions of a Consensus Committee of 15 key opinion leaders from the atopic eczema community. As multidisciplinary experts, they conducted an assessment of the atopic eczema community around the three areas that affect patients the most :

1. The physical and emotional burden of AD/E

2. The diagnosis and care burden of AD/E

3. The financial and economic burden of AD/E

Read the report: DanishDutchEnglishFrenchGermanHungarianPortugueseSerbianSlovenianSpanishTurkish

 

A yellow and purple coverDescription automatically generatedAtopic Dermatits Advocacy

Since 2017, EFA has been vocal in advocating change for all people living with atopic eczema in Europe. 

Itching for Life, EFA’s Patient Reported Outcome on severe atopic eczema in Europe

One of our most relevant contributions to advocacy for atopic eczema has been the biggest-ever Quality of Life survey on severe atopic eczema, conducted in 2018, a patient reported outcome measurement (PROM) that surveyed almost 1,189 patients from 9 European countries. The resulting report “Itching for Life: Quality of Life and costs for people living with severe atopic eczema in Europe” uncovered the reality of atopic eczema, a chronic inflammatory skin disease affecting 3% of adults and 20% of children in Europe, of which 1 in 5 lives with a severe condition. The results of EFA’s report were a breakthrough report that shed light into the life and economic costs encountered by atopic eczema patients. 

Read the report: CzechDanishDutchEnglishFrenchGermanItalianSpanishSwedish

 

Press - Information and Materials for Journalists 

The Atopic Eczema Community will come together on September 14th to raise awareness for the disease, to speak up about the burden it has on patients and caregivers, and to recognise the need for care and treatment that is reflective of the multi-dimensional nature of the disease.

 

2024 Theme: #AtopicEczemaUnfiltered

This year’s #AtopicEczemaUnfiltered campaign will focus on revealing the true, unfiltered reality of those living with atopic eczema, highlighting their daily challenges and the need for comprehensive care. The Press Release of the 7th World Atopic Eczema Day will be available on 14 September, 2024. 

Should you be interested in arranging an interview with Marcia Podestà, EFA President, please reach out to This email address is being protected from spambots. You need JavaScript enabled to view it..

Find out more information on World Atopic Eczema Day. Should you have any further questions, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it..