mHealth experts closer to draft guidelines for mHealth data reliability
The European Commission working group on mHealth continues working towards the development of guidelines for the assessment of the validity and reliability...
EMA Patients and Consumers Working Party Meeting
EFA participated in the European Medicines Agency Patients and Consumers Working Party meeting on the 21st September were eligible organisations were to...
myAircoach ends finalist of European Commission Radar Prize
myAirCoach project for an mHealth device for asthma management is about entering its last year of activities and the innovative tools and systems are starting...
EFA booklet on air travelling with oxygen re-published
EFA has published an updated version of our booklet on travelling by plane with oxygen treatment. The new edition includes the revision of the policies...
IMI Stakeholder Forum 2016 – Innovative medicines for patients
IMI Stakeholder Forum 2016 took place in Brussels on 28 – 29 September.
During the first day, the IMI scientific team provided an overview of IMI’s...
MobileHCI 2016 Conference – mHealth for patient empowerment
The MobileHCI 2016 Conference took place in Florence from 6th to 9th September 2016 to discuss about human-computer interaction with mobile devices and...
EPF transparency capacity building
For patients’ organisations, ethics and transparency are key values. However, practice is more difficult than it looks like, especially because these...
EFA launches its Communications Network
In September EFA held the first Teleconference among EFA Members interested in sharing and learning about communications at European and national levels....
EFA Patient Education survey results
Thank you to all respondents of EFA Patient Education Survey!
The survey is an initiative of EFA Patient Education working group that aimed to know more...
Social media for healthcare – EMA Workshop
The European Medicines Agency (EMA) organised a workshop on Social Media arising from the work of EMA Social Media Topic Group. EFA Isabel Proaño is member...
Asthma Society of Ireland has a new CEO
We would like to welcome Ms. Averil Power, who has been appointed as chief executive officer of EFA Member the Asthma Society of Ireland, substituting...
Food Allergy Italia organises a sports day for allergic children
EFA Member Food Allergy Italia organized on the 18th September in Padua the 12th edition of "A day of sports together" in collaboration with the Italian...
#Call4Action – Improve Lung Donation and Transplantation across the EU
The European Pulmonary Hipertension Assocation has launched a call to action to improve Organ Donation and Transplantation across the EU. Organ transplantation...
In memoriam - Wim Wientjes, asthma patient, diabetes advocate
Mr. Wilhelmus Henricus Joannes Maria Wientjens passed away in peace last 28th July 2016. He was an asthma patient and a devoted diabetes advocate....
Anaphylaxis Campaign to join EFA during next AGM
The Anaphylaxis Campaign association, a UK charity representing severe food allergy patients, is likely to join EFA Membership during the 2017 AGM, after...
PRESS RELEASE: Smartphones could improve young people’s health literacy and adherence
2016 European Health Forum Gastein (Austria) – Asthma is the most common chronic disease in childhood. Today, 30 million European children and adults...
Respira promotes day to day outdoor breathing activities
EFA’s Member Respira together with a private company and a public hospital launched. The project Breath: a Day to Day Activity with the objective to...
European Association of Systems Medicine Conference
The European Association of Systems Medicine (EASyM) is organisation its first conference on October 26th-28th in Berlin, that will gather scientists from...
Health and environment associations mobilized against TTIP once again
In July, more than 60 non-profit associations sent a letter to the President of the European Parliament Martin Schulz arguing that the European Commission...
Added-value of patient organisations – EPF survey
EFA Director Susanna Palkonen is actively participating at EPF Working Group on sustainability of patient organisations, which drafted a survey to demonstrate...