Adherence and young patients with asthma at ERS, EMA and EHFG, and now in French German, Spanish
In September we published the translations into French, German and Spanish of our HEY YA report on young patients with asthma that we presented at the...
Society’s expectations for EU health research discussed
Patients expect that health research arises from real needs of patients with real diseases and the society as a whole that public health issues are served....
Control exposure to allergens to minimise food allergy reactions?
EFA EU Policy Adviser Daniela Morghenti participated at the workshop “How far can we control the severity of food allergenic reactions by controlling...
1st Conference on Patient Access in Eastern Europe
The Patient Access Partnership (PACT) held its first Regional Conference entitled “Cooperation within the region: a way to improve access to quality...
Allergenicity assessment of genetically modified plants: our perspective
Genetically modified (GM) plants used for food and to feed can only be marketed in Europe through a preliminary authorisation following a scientific assessment...
mHealth experts closer to draft guidelines for mHealth data reliability
The European Commission working group on mHealth continues working towards the development of guidelines for the assessment of the validity and reliability...
EMA Patients and Consumers Working Party Meeting
EFA participated in the European Medicines Agency Patients and Consumers Working Party meeting on the 21st September were eligible organisations were to...
myAircoach ends finalist of European Commission Radar Prize
myAirCoach project for an mHealth device for asthma management is about entering its last year of activities and the innovative tools and systems are starting...
EFA booklet on air travelling with oxygen re-published
EFA has published an updated version of our booklet on travelling by plane with oxygen treatment. The new edition includes the revision of the policies...
IMI Stakeholder Forum 2016 – Innovative medicines for patients
IMI Stakeholder Forum 2016 took place in Brussels on 28 – 29 September.
During the first day, the IMI scientific team provided an overview of IMI’s...
MobileHCI 2016 Conference – mHealth for patient empowerment
The MobileHCI 2016 Conference took place in Florence from 6th to 9th September 2016 to discuss about human-computer interaction with mobile devices and...
EPF transparency capacity building
For patients’ organisations, ethics and transparency are key values. However, practice is more difficult than it looks like, especially because these...
EFA launches its Communications Network
In September EFA held the first Teleconference among EFA Members interested in sharing and learning about communications at European and national levels....
EFA Patient Education survey results
Thank you to all respondents of EFA Patient Education Survey!
The survey is an initiative of EFA Patient Education working group that aimed to know more...
Social media for healthcare – EMA Workshop
The European Medicines Agency (EMA) organised a workshop on Social Media arising from the work of EMA Social Media Topic Group. EFA Isabel Proaño is member...
Asthma Society of Ireland has a new CEO
We would like to welcome Ms. Averil Power, who has been appointed as chief executive officer of EFA Member the Asthma Society of Ireland, substituting...
Food Allergy Italia organises a sports day for allergic children
EFA Member Food Allergy Italia organized on the 18th September in Padua the 12th edition of "A day of sports together" in collaboration with the Italian...
#Call4Action – Improve Lung Donation and Transplantation across the EU
The European Pulmonary Hipertension Assocation has launched a call to action to improve Organ Donation and Transplantation across the EU. Organ transplantation...
In memoriam - Wim Wientjes, asthma patient, diabetes advocate
Mr. Wilhelmus Henricus Joannes Maria Wientjens passed away in peace last 28th July 2016. He was an asthma patient and a devoted diabetes advocate....
Anaphylaxis Campaign to join EFA during next AGM
The Anaphylaxis Campaign association, a UK charity representing severe food allergy patients, is likely to join EFA Membership during the 2017 AGM, after...