EU Health Commissioner invited us to present our views on HTA
On May 15th we were amongst the 8 patient, consumer and public health associations invited by the EU Commissioner on Health and Food Safety Vytenis Andriukaitis...
Campaign on travelling with allergies in the UK
This year the World Allergy Week took place from the 23d of April to the 29th of April, with many patient initiatives to raise awareness about allergies.
EFA...
First European Alpha-1 Awareness Day
On the 25th of April, EFA’s Roberta Savli took part in an EU Roundtable on Alpha-1 Antitrypsin Deficiency (a genetic disorder that can cause serious...
Online chat launched for allergy and asthma patients in Sweden
EFA's Member, the Asthma and Allergy Association of Sweden, has a web service called AllergiSmart, targeting people who have or are close to someone with...
The Swiss Pulmonary League launches 11 learning video clips for children with asthma in German, French and Italian
EFA Member, the Swiss Pulmonary League, has launched eleven learning video clips to help children with asthma manage better their condition. It complements...
Patients are driving the future of Severe Asthma research through ERS SHARP
SHARP is a Clinical Research Collaboration promoted by the European Respiratory Society. It stands for Severe Heterogeneous Asthma Research Collaboration,...
We presented the preliminary results of the biggest-ever atopic eczema survey for patients in Utrecht
Atopic Eczema is a very common inflammatory skin disease for which the predominant symptom is ITCHING. It is often underestimated but the signs and symptoms...
ERS severe asthma satellite
EFA’s president Mikaela Odemyr (Stockholm) and Susanna Palkonen (Brussels) took part in the ERS first ever Satellite symposium, dedicated to where we...
Our vision for the EU is healthier
Last 19th of April, EFA together with other 14 organisations published a joint statement on the future of health in the EU, ahead of the Employment, Social...
The Manifesto on Influenza Vaccination at the core of the vaccination week
Last 24th of April, EFA, together with the six other organisations, launched the European Union Manifesto on Influenza Vaccination. The Manifesto, which...
Europe aims to have a 1 million genomics database by 2022
Health sometimes is not only linked to health ministries but to trade. Last 10th April, the European Commission Single Market directorate, celebrated the...
EFA leaders meeting on personalised medicine, data protection and sharing, real world evidence
The next morning day, Tuesday 17th, we welcomed six guest speakers who are the top experts on their specialty in a session that explored the future of...
We welcomed a new Member and a new Board Member
On April 16-17, we celebrated our Annual General Meeting in Lisbon, Portugal, were EFA Members approved our annual 2017 report, accounts, budget and 2018...
PRESS RELEASE: World Asthma Day 2018
Life is possible for patients with severe asthma
Provided that they have accurate diagnosis
Brussels, 1st May 2018 – WORLD ASTHMA DAY – Today European...
FFAAIR brings the patient perspective and needs to major respiratory congresses in France
2018 has started with a bunch of important events devoted to respiratory diseases in France, and EFA Member FFAAIR has been an active member in many of...
Sweden is closer to ban smoking outdoors, as asked by patients
It is well recognized today that tobacco smoking increases the risk of developing diseases like respiratory tract infections, asthma and chronic obstructive...
Asthma Society of Ireland phone line helped 70% of those under 50 to avoid missing school or work as a result of their asthma
EFA Member the Asthma Society of Ireland FREE Adviceline service has showed extensive positive impacts for service users. The recent partnership research...
MyAirCoach will be presented at the most influential 2018 digital health conference
MyAirCoach is almost a reality! The consortium will participate at HIMSS & HEALTH 2.0 conference in Spain next May 27-29, the most influencial eHealth...
EU launches “Chemicals in our life” multilingual website
In March the European Chemicals Agency (ECHA) launched a new dedicated website to inform consumers about the benefits and risks of chemicals in their everyday...
Sign the EU Manifesto on Influenza Vaccination
On March 12, EFA launched a 10-point Manifesto calling the EU for more action to increase seasonal influenza vaccination coverage rates in Europe. Influenza...